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Advocating for your health helps you get the care you need and make important decisions regarding your well-being. Each year, 250,000 women in the United States receive a breast cancer
diagnosis. Survival rates continue to improve, but early detection remains crucial for minimizing the invasiveness of treatment, especially since tumors are easier to manage in their initial
stages. This is why it’s so important to speak up when you see or feel something abnormal in your breasts. Advocating for your health helps you get the care you need and make important
decisions regarding your well-being. Here’s what four breast cancer survivors wish they’d known about speaking up, and how practicing self-advocacy empowered them before, during, and after
their diagnoses. Join the free BC community! Connect with thousands of members and find support through daily live chats, curated resources, and one-to-one messaging. 1. PERSEVERE FOR PROMPT
AND PROPER CARE The first step in breast cancer detection is seeing a doctor to get a mammogram, which can potentially prevent a tumor from spreading. Even so, breast cancer survivor Leanna
Blanchard, PT, DPT, OCS, who was 28 when she first felt a lump in her right breast, was told she’d have to wait a month to see a physician. “It didn’t feel right to me to have to wait, but
I didn’t know how to escalate it. I second-guessed myself and how serious this lump could be,” says Blanchard, a board certified specialist in orthopaedic physical therapy, whose patients
include those affected by breast cancer. Blanchard finally saw a doctor, but when a mammogram and ultrasound were ordered, she had to wait another month to get them — which eventually
resulted in a diagnosis. “I wish I had looked at other local clinics that could have maybe gotten me in sooner,” she says. “It’s unlikely that the 2 months I spent from finding the lump to
getting the diagnosis would have made a difference in the way I was treated, but I’ll always wonder if it could have.” Facing barriers to care is frustrating, but we all have the right to
access a quality doctor when needed. “It can be really hard to advocate for yourself and push for what you need, but you just have to never give up. Trust your body — you know it best,”
Blanchard says. Advertisement Ad revenue keeps our community free for you 2. CONSIDER A SECOND OPINION In addition to persevering for access to care, it’s vital to explore all potential
treatment avenues. Since breast cancer is treated differently depending on your situation, it’s important to seek another opinion on the best course of action. “Once I received my diagnosis,
I was really overwhelmed, but one thing I’m so glad I took the time to do was get a second opinion,” Blanchard says. If you get the same (or similar) recommendations from another physician,
you can feel fairly confident it’s the best plan for you, she adds. While overwhelming, having a range of options is an opportunity to consider what’s most important to you. “A cancer
diagnosis can make you feel powerless,” Blanchard says. “Getting [another opinion] gives the power back to you. It puts you back in charge of your body.” 3. ASK TRUSTED LOVED ONES FOR HELP
Loved ones can help support you on your self-advocacy journey. “Sometimes you might not be able to remember everything that is said. So two sets of ears are good, plus a notebook,” says Joy
Tassillio, a breast cancer survivor who has been in remission for almost a year and a half. The presence of a friend or family member at doctors’ appointments can ease the burden of
obtaining so much information — especially at the first few appointments. On the flip side, having someone in the room can limit your personal agency if they have a more outgoing personality
or they’re prone to speak for you. Blanchard suggests coming up with a game plan ahead of time. Delegate who will ask questions and who will take notes, so both you and your support person
know what to expect. Advertisement Ad revenue keeps our community free for you 4. ASK QUESTIONS TO GET WHAT YOU NEED A breast cancer diagnosis is overwhelming, but it’s important to seek the
answers you need. Breast cancer survivor Marianna Lewis, a school teacher in Fort Pierce, Florida, explains that asking questions is important because it ultimately helps you make the right
choice for you. “I strongly suggest asking as many questions as you can,” she says. “No question is a stupid question.” With the help of her husband, a tight-knit community, and time to
think, Lewis chose the option that best suited her journey: a bilateral mastectomy with reconstruction. “Everyone in the end has to do what they feel is right for them,” she says. “It was a
long road, but I do not regret my decision.” Asking questions can also help you navigate through the treatment options that don’t feel right, adds Tassillio. She was advised to try
chemotherapy, but ultimately chose against it. SELF-ADVOCACY MATTERS FOR EARLY DETECTION AND PERSONALIZED CARE No matter where you are in your breast cancer journey, an attitude of
self-advocacy is a must. When you speak up, ask questions, and persevere through uncertain waters, it’s not only to access quality care and find the right regimen for you. It’s also to fight
for your right to live, says breast cancer survivor Michele Staron. “If you are uncertain, get a second or even a third opinion, but fight for your life, because we only have one,” she
says. “Listen to your body, don’t shrug things off even when you’re told you are fine. No one knows how or what you feel inside except you.” _ARTICLE ORIGINALLY APPEARED ON NOVEMBER 2, 2020
ON BEZZY’S SISTER SITE, __HEALTHLINE__. LAST MEDICALLY REVIEWED ON NOVEMBER 2, 2020_.